Monday 10 July 2017

A Big Week - Day 1

A big week Day 1

We arrived in Birmingham late last night. Second seizure of the day was a Taunton Deane services....pleased to report that their disabled loos were clean, and they have showers!  We got 10 minutes away from Birmingham in reasonable time and then the motor way was closed both ways due to a car fire and so we got stuck for over an hour! But hey ho, we got here eventually! We stayed last night and tonight in a lovely little Airbnb place, a little annex to the house (with wifi and Sky TV so Immi is happy!). It is lovely and the host is the head of patient experience at Birmingham Children's hospital where we will be, so she has asked if we can give her feedback! Mystery hospital stays...a whole new concept!! Lol!

This morning we went to a local French coffee shop - it really did feel like France inside complete with the music (which Immi loved) and fruit tarts. It was a lovely start.
And then off to Cadbury world.  As we arrived all the characters were outside with a couple of smart looking people, having a photo shoot. The parrot looked pretty perturbed when Immi bounce up and asked for a photo! They definitely weren't there for the kids! We found out later that one of them (the smart ones, not the dressed up ones!) is the present president of Cadbury, so it must have been a photo shoot for something important!

We had a fun time going around Cadbury world and Immi did well, until about lunchtime when she had a seizure and fall and had to be changed.  After that she was complaining of a pain in her hip so things got a lot slower, she nearly fell asleep when we sat on a bench and as we had done the tour and 3D experience we thought we should call it a day there. 
Yesterday I had made the realisation that all of her nightwear is the sort that goes over the head and so I had scoured the Internet for button up pjs.  Immis is of that age where she is too big for many shops kidswear but not big enough for ladies wear (and her tastes in clothes aren't in that place at all!)    I managed to find a couple of button up short pyjamas in M&S and had ordered them so we swung by to pick them up and then came back to our Airbnb pad. 

It has been a lovely day....not trying to ignore the events of the next few days at all!!!

7 comments:

  1. Beautifully written my darling xx

    ReplyDelete
  2. Thoughts and wishes with all of you this week ♡

    ReplyDelete
  3. With you all in spirit, petal xxx S

    ReplyDelete
  4. You are amazing Karen. Thank you for sharing your journey in an authentic way. Keep strong (I know you'll keep strong in your Lord) we will be supporting you in prayer all the way. Blessing to you & Immi & lots of love x

    ReplyDelete
  5. I have just started reading your blog. Beautifully written xxx
    Debi Dallimore.

    ReplyDelete