Recovery Day 1

After the Dr coming round and being a little concerned that she hadn’t woken or spoken, Immi woke up at about 11pm last night and had a little soup. Her head has swollen a bit but nothing abnormal. There is potential for this to increase before it decreases. She has walked to the loo this morning and is talking (but grumpy!) At present she is happy to sit and watch her ipad and just rest up.
I slept well at RMcDH and Murray has gone over now for a nap after a long night on the ward.
Will keep you updated.  Thanks everyone. K xxx

Back with us

She’s back on the ward. She VERY reluctantly opened her eyes for a sec and moved her toes and then went on strike. On half hour observation for a while now. Vocabulary and speech are the main concern now, as well as the actual biopsy results of course. Thank you to ALL of you for all your love and support. Xxx PS that top photo is me writing this!! X

Soul surfing

We are in that surreal moment where she is in surgery and there isn’t much we can do and tbh concentrating on anything (including prayer) is really hard but, it is at this moment that being part of God’s family comes into its own....

I feel like we are being upheld at the moment by your prayers. You know when a rock star jumps off the stage and is held up over the crowd and moves along above their heads. That is kind of how I feel at the moment, that your prayers are holding up and not letting us land on the floor in a broken heap. 

I’m not sure how you feel your prayers make an impact, you may not feel that you’re making a difference, but I want to let you know that every prayer, every message, every text is making a huge difference to us, to Immi, to the heavenlies.  I feel at the moment, that without your prayer I would be a crumpled, tears, snotty mess. 

In other news, we have just been given a room at Ronald McDonald House which is wonderful as it means we can tag team and have somewhere to rest, esp while she is on high dependency. 

It’s 5pm now, hopefully she will be in recovery soon.  Will let you know. Xxx

Oh my word I forgot how noisy it is on the ward! Immi had 3 short seizures during the night and the girl next to her had some too, a toy was playing over an over somewhere in the distance and a little baby coughed and cried all night. But we made it!
We have met Dr Bug and Tom the anaesthetists, said a quick hello to Mr Walsh (neuro surgeon), and now it’s just a waiting game until 2ish.
Thanks so much for all your care....xxx

Ready to go

So we are set up on the ward - the same bed as last year- all booked in, consent signed, bloods taken, trifle eaten (Immi that is!) we have only eaten jelly babies so far! Both surgeons are happy with the finger and they have added an infection check in the bloods screen (so do keep praying as we aren’t quite out of the woods yet).
Immi is in good form and we should hear in the next half an hour if there is a space at Ronald McDonald House.
The surgery is planned for tomorrow about 2pm, so she can’t eat anything tomorrow morning.
Will post more tomorrow. Xx

Off we go.

After a pretty restless night, we sent a photo off to the surgeon this morning and he replied that we should be ok to do the op, so we packed up the car and have just left. Immi has developed a bit of a cough this morning so hoping that’s just a morning thing.
Thanks to everyone who has sent thoughts, prayers and practical help. We will keep you updated. Here are couple of  photos; the one we sent this morning for those of you more medically inclined who would like to see the progress! 😉 And a beautiful picture drawn by a lovely friend and artist, Dani Godden which has been so poignant over the last few days...x

Down to the wire

So we are pretty much packed and the neurosurgeon has just rung about Immis finger. He said if there was any chance of infection he wouldn’t want to do the op. We sent him a photo via messenger and he had a look and was unsure. He has asked us to send another photo at 7am tomorrow morning (we would be leaving at 8am) and the decision will be made then. Please please pray the finger looks much better in the morning or the whole thing will need to be postponed (his next a lot is just before her birthday whichever I think we may struggle to get her to agree to).
Feeling pretty stressed out now. We are all psyched up and really just want it over and done with now.